Sigh. For the third year in a row, I am scrambling to figure out B’s schedule for the upcoming school year.
I got devastating news this morning from his aftercare. They will not be able to do an after-school program after all. Partially it’s due to administrative hurdles and partially due it’s to their focus on a full-day kindergarten pilot test program.
There These are all very understandable reasons.
Whatever the reason, this once again plops us into a logistical nightmare. Literally, three weeks from the start of school. We have to figure out what ECSE time slot (AM/PM) would work best, and then see if another Center will take him after his “aftercare” closes (for those that are confused, his aftercare is only open until 3:30PM). Not only will that be an additional cost for that Center, it would mean that B would once again be bounced around from one place to another.
And to put it bluntly, it’s my fault. It’s because I work full-time that is putting him in this situation. It’s also my fault because I actually enjoy working, the majority of the time.
You see, there’s no perfect solution to my problem. There is about a 1-2 hour gap that we have to make up. No ECSE program goes for a full day. His wonderful, inclusive aftercare (which we love, a success after his previous suspensions and departures from other facilities) is only open until 3:30 PM.
Both Husband and I work full-time, approximately 20 miles from the house. And in DC area traffic – that can equate to an hour commuting, depending on the day. And while I do enjoy the flexibility of working from home “when I need to” – teleworking is not truly a possibility.
Today, I definitely cannot “have it all”. And today, I definitely relate to the fact that moms of children on the spectrum have to work so much harder to cobble a system of care. I’m tired of fighting at every corner to make sure my son has the support he needs.
I’m tired of having to deal with explaining why my son “has to” go to different places at different times. I’m tired of working around everyone else’s “breaks”. I’m tired of being pulled in different directions because “something” has happened in B’s schedule that I have to fix (of course, very quickly as well).
Today, I’m tired of being the case manager and advocate for Mayor B. I just want it to work out, for once, without any type of major hiccup and headache. Seriously is that too much to ask? I just want to scream from all the aggravation I’m feeling at this moment.
I don’t know what is going to happen. I have to start all over again with my network – reaching out to see what schedule would work best for B. I have to weigh all the cost considerations in addition to the transportation options. Husband and I will need to have another pow-wow to figure out what to do.
But all I want to do right now is alternate between banging my head against my desk and burst out into tears of frustration. I’m drained, tapped out for the moment.
Oh, and did I mention the dog’s relapse from his Protein Losing Enteropathy (PLE)? Over the past day and a half, he has had diarrhea episodes. Both in and outside the house. The house is stankalicious at the moment which we have to remedy ASAP. Ugh.