The Cotton Anniversary

June 22, 2010.

The day where nothing changed, yet everything did.

It’s a big date. Much like our wedding anniversary, the kid’s birthdays, or Christmas – it holds special meaning for us.

It’s the date we got the “official” diagnosis from B’s developmental pediatrician. PDD-NOS. The acronym that sent me scurrying to the Interwebz once we got home to understand exactly what was going on.

The day where we exhaled and looked at each other and knew that, no, we weren’t imagining things. That we weren’t making excuses for what was going on. That we now had something to work towards.

In the past two years, so much has happened. With the help of a growing network of teachers, therapists, and support staff B has thrived. And crashed. But, mainly thrived.

With the bumps in the road with his various aftercare settings, we have learned what works, what doesn’t work, and what will cause fireworks of the not-so-good kind.

In reaching out and meeting more people with children on the spectrum, we have learned that we are not so alone. That there are people who simply get it. Or, at the very least, try to understand.

I’ve learned about new programs and opportunities. We raised money and walked as a family. We’ve enjoyed some monumental milestones that I wasn’t sure we were going to get to.

Don’t get me wrong – there has been pain. Frustration. Screaming matches. Timeouts (not just for B). Days where I get through the workday and not sure exactly what the evening will hold. Where my own thoughts get jumbled and distorted because I cater to the demands of autism.

So, Happy Annivesary to you, autism. It’s been a bumpy ride, but we are still together.

B in June 2010. Still when he had mainly blonde hair.


About OneLoCoMommy

I live in Northern Virginia and and I look like the stereotypical suburban mom, for better or for worse. My son plays baseball and takes karate (albeit adaptive). My daughter is a gymnastics diva but rolls with the boys in T-ball. I've been a Room Mom and Playdate Coordinator. I work full-time, try to work out, and love my Book Club. However, I also blog on my experiences on our ASD, SPD and ADHD journey while trying to be a better parent advocate. All in a life's work.
This entry was posted in Autism, Autism Awareness, Intervention, Life, Ramblings and tagged . Bookmark the permalink.

11 Responses to The Cotton Anniversary

  1. Kristen says:

    So incredibly true! Thank you for sharing. We will hit four years this August and after some initial fall-out and some rather large bumps in the first couple of years, but overall, this was not the scary, desperate journey I was told it would be. Yes there were/are scary moments and moments of desperation, but to focus solely on them means we would not enjoy the amazing children we have been blessed to parent.


    • OneLoCoMommy says:

      I think it was very lonely at the beginning. But as time goes on, and perhaps as I get more comfortable on the journey, it gets easier. Or, at least I become a little smarter. 🙂


  2. Love how you shared this day with us. A day I’m sure was a hard one to swallow. Thanks for your honesty! I never can imagine just how hard this is for a parent and it’s so hard for me to mention to a parent that I see symptoms of autism in their child when I’m evaluating them. I never now if I’m gentle enough. Your story is going to help a lot of people.


    • OneLoCoMommy says:

      Thank you! It was very difficult at the beginning, especially when we started EI. I’m grateful for facing it back then however, as the progress has definitely outweighed any fear I had.


  3. It’s so amazing that you can share your life this way. I’m sure it was hard to be handed that truth, but sometimes giving something a name gives you a little more power over it. Your son is lucky to have been born to parents that will fight so hard for him.


    • OneLoCoMommy says:

      It was so difficult at first. At that age, it is extremely tricky to tell what is “typical” toddler behavior and what is more serious. Deep down, though, I knew something was going on…and it’s never easy to face up to that.


  4. Denise says:

    B has done so well. And so have you guys.


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