Is This Thing Still On?

So, er, hi.

Yeah, it’s been a while.

Like, yeah, months.

Seriously, there are reasons.

It’s not for lack of trying. There are days I want to post, but something – ANYTHING will get in the way. At work, any social media is verboten on the computer, and working by cell is very limiting. By the time I get home (dinner, homework, baths, etc.), I’m too damn tired. Or there’s a Real Housewives of Some Rich Ass Place that allows my brain to shut off and turn off from any other form of “real life”.

The weekends fly by between sports (oh yeah, BOTH kids played some sort of baseball, and Diva does gymnastics), errands, and maybe a few winks of sleep. I even get some laundry washed and perhaps put away. Clean clothes trumps the blog, hate to tell y’all that.

Or, I sit to start typing, and inevitably have to get up and referee one of the gazillion arguments the kids have over some “important” thing. Like, oh, which toy makes the loudest noise. Why one kid has the blue push-pop and the other has pink. Or perhaps they like to make our first floor the Indianapolis 500. Who knows – each time they make it sound like there are 20 kids, not 2, in my house, by the volume of their voices.

However, I will say that it’s been busy. There have been some really neat things that happened, some crappy things that have happened, and some “meh” things that have happened.

One of the biggest things is that B is on the DD Waiver List for Virginia. [Note: I write “DD Waiver” but the official title is The Individual & Family Development Disabilities Support Waiver (IFDDS)] This is a different Medicaid waiver from the EDCD Waiver which we were denied back in January. However, this was not without drama as well. We had to drive to Harrisonburg, VA (2 hours one way thank you very much state budget cuts) for a 30 minute screening. Yeah, that’s what you read. Two lovely women met with us, asked us questions (to determine levels of functionality for B) and sent us on our merry way.

On the way back, our van met an untimely demise – we were involved in a car accident. We are all fine no worries! However, B was definitely freaked out – the airbags did deploy, sending plumes of dust throughout the van – so he clearly thought we were on fire. After the first responders arrived, we got a fun ambulance ride to get him checked out (safety first!). I’d like to say we were “spreading autism awareness” that day in the county, lol.

Again, we are both fine…the van did NOT make it, sorry to say. We had to say goodbye and now we have a new car which both kids have gotten used to.

Anyway, like I said, B is officially on the “wait list”. What does this mean?

Well, the DD Waiver has “slots” that are funded by the Virginia General Assembly. During sessions it’s debated about how many “slots” will open on the Waiver.  Currently, it’s a first come first served waiting list – but that may be changing.

During the last General Session, as The Arc of Virginia’s Policy Blog highlights, notes:

  • “The budget bill retains the funding required by the U.S. v Virginia Settlement Agreement for 450 new I/DD Waiver slots for individuals on waiting lists and in Training Centers. These slots will be available beginning July 1, 2015. These slots were included in the budget passed by the 2014 General Assembly and remained in the Governor’s proposed budget this year. The breakdown of these Waivers is as follows:
    • 325 ID Waivers for individuals on the ID Waiver Waiting List
    • 40 DD Waivers for individuals on the DD Waiver Waiting List
    • 85 ID Waivers for individuals exiting Training Centers
  • The budget bill does not increase funding for I/DD Waiver slots.
  • The conference committee report eliminates the Day Support Waiver Redesign language from the Governor’s proposed budget bill and eliminates the 200 “Building Independence” Waiver slots which is likely to result in delaying the implementation of the redesign initiative by The Department of Behavioral Health and Developmental Services (DBHDS). (301 #5c).”

At this rate, we are talking, literally, YEARS, on the waiting list. Which is why originally I was so depressed about the process – B will most likely not see any fruition of my efforts until his teen years. But, I guess if something is out there – one must try, no?

We have selected a case manager – Moms In Motion – who I actually met at last year’s Surfers Healing event.  This past week we had our first meeting which went well, considering there isn’t much to do. We need to work on qualifying B on Medicaid, but it’s ideal to do it on his income, and not on ours (for obvious reasons). I did get some new resource leads, which is encouraging.

And, of course, we have nothing but time, right? Time to work on these things, I suppose.

If after reading this, you are still wondering about applying for the DD Waiver (in the state of Virginia) – consider checking out The Arc of Northern Virginia for a handy step-by-step guide.


About OneLoCoMommy

I live in Northern Virginia and and I look like the stereotypical suburban mom, for better or for worse. My son plays baseball and takes karate (albeit adaptive). My daughter is a gymnastics diva but rolls with the boys in T-ball. I've been a Room Mom and Playdate Coordinator. I work full-time, try to work out, and love my Book Club. However, I also blog on my experiences on our ASD, SPD and ADHD journey while trying to be a better parent advocate. All in a life's work.
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One Response to Is This Thing Still On?

  1. Glad to see you back. So sorry about your van! Scary! Glad everyone is okay.


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