The Wooden Anniversary.

Nowadays, getting a few moments of peace and quiet is as challenging as doing the American Ninja Warrior course. Regardless, I just remembered that we passed another milestone.

Every year there is something to be said for eventual progress for our kids, whether neurotypical or special needs. I have the gift of each one for better awareness. And every year, mid-June, I’m reminded again of how far into our autism journey we are with B. Technically, it’s June 22 – so in a typical relationship I would be mad at my significant other for not remembering.

But, as you know, autism is not a typical relationship, is it?

This year it’s six years. Six years after diagnosis. Originally PDD-NOS, we now have moved into HFA territory with the DSM change. By modern gift accounts, it’s the wooden anniversary. The last time I wrote about it was in 2013 – Three Years Ago.

I look back now and see monumental changes. B is now a rising third grader. I’m more involved with Little League snack lists and Instagram’ing his baseball antics than blogging. My daughter M is quite the gymnastics fan when she isn’t fighting for her own place in the world.

DSC_0136

Image posted from summer 2016: B and Miss Diva M doing what they do best -being silly.

This summer my son will wrestle with “typical” camps (karate and community serve) and we were beyond blessed to be invited to be in a pilot program at Paxton Campus. It’s for older kids (beyond their normal camp) that will continue to work on social skills. I’m pretty sure they read my mind when we were denied yet again for ESY (Extended School Year) that B still needs additional guidance in the summer.

And as much as it pains me, we are not participating in Surfers Healing this year. B has been vocal about not participating, and the timing didn’t work this year either. Additionally, the change to a lottery system wouldn’t have guaranteed us a spot. Personally, I’m not a fan (I was one of those that put reminders in 15 places and was parked at 7PM sharp to register) but I have to respect their decision. One year I think I will volunteer.

Miss Diva M graduated Pre-K at her school and now is a rising Kindergartner. Holy criminy. She is what one would call, “spirited and independent”. She’s also quite caring and looks after her big brother. She will stay at her school this summer. Sometimes separation is good for the kids.

As time marches on, I’ve slowed down (hell, stopped) blogging regularly. Partially because work has been very consuming and life has sucked everything else out of me. However,it’s partially because I’ve made it to the point where my son is older and is more cognizant of himself.

It is still not all rainbows and unicorns. It’s definitely not doom and gloom. But some days, it’s both. I struggle on a daily basis to balance the two extremes.

Yes, he knows he is autistic. While I tried to tell him in the past (and it never seemed to click) – he is aware now. He’s aware of some things he does. And I’ve realized that I need to adapt as well. Funny how that works when you are set into a routine.

So, we’ll see what happens. But we are still here, living and staying strong.

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About OneLoCoMommy

I live in Northern Virginia and and I look like the stereotypical suburban mom, for better or for worse. My son plays baseball and takes karate (albeit adaptive). My daughter is a gymnastics diva but rolls with the boys in T-ball. I've been a Room Mom and Playdate Coordinator. I work full-time, try to work out, and love my Book Club. However, I also blog on my experiences on our ASD, SPD and ADHD journey while trying to be a better parent advocate. All in a life's work.
This entry was posted in Autism, Daycare, Family, Fun in the Sun, Life, Little League, Magic Moments, PDD-NOS, Ramblings, School, Siblings, Special Needs. Bookmark the permalink.

One Response to The Wooden Anniversary.

  1. Kristen says:

    For the first time, we were denied ESY this summer too. We moved last year and the new district stated that since it takes 29 days instead of 30 for her to re-acclimate after breaks she does not qualify and they refused to take her 90+ day adjustment at the beginning of the school year into account. 😦

    I was the same way with Surfers Healing sign ups, but we got in with the lottery (but shhhh…we haven’t told many friends even because so many did not get in this year).

    Good luck with camps! Sounds very exciting!

    Liked by 1 person

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