Ain’t Got No Time For That (AKA: Why The Blog Is Quiet)

“Life is what happens while you are busy making other plans.” – John Lennon

I did not plan to take a break from the blog. But sometimes, that’s what happens when life happens.

In May I accepted a new job in which I gained a bit longer commute and the inability to e-mail any drafts I work on during lunch (silly workplace blocks). I really enjoy the job though which is important and the people are great. Having an onsite cafeteria with free coffee is a nice touch.

We rescued a new dog. His name is Curtis and he’s a beagle. OH boy is he a beagle. :) He is awesome around the kids but needs work on things like…oh, not peeing in the house. Or walking on a lead.  Or not destroying blinds/gates/crates, etc. Sigh.

This is Curtis, the newest member of the family.

This is Curtis, the newest member of the family.

In May I also got my gallbladder removed. Apparently I had six gallstones of various sizes lodged in my gallbladder. No wonder I was in pain and cranky. Feeling much better now.

Before I started my new job I traveled to Pennsylvania to bury my dad’s ashes. My mom then decided she will move in with us after Thanksgiving. She did not want to stay at the farm for one more winter which I cannot disagree with. There’s been a lot of work transferring assets and accounts & getting her to discard things that she just doesn’t need.

June marked the end of Kindergarten. We started a new routine  – taking B back to Paxton for summer camp. The change causes me to get home later in the day – triggering a rush to make dinner, baths, etc. I’m so exhausted in the evenings the best I manage is a little TV and Candy Crush.

June also marked 10 years of my mom’s kidney transplant (yay!) and 6 months of my father’s death (obviously not yay). I hate that he’s not here to see the kids grow up. Every once in a while there will be a gentleman that will remind me of Dad and my heart hurts again.

My aunt (mom’s sister) is now failing in health so my mom traveled to Texas for two weeks to help out. She is in renal failure – she has similar kidney issues as my mom. Miraculously she is still kicking but sadly  it’s only a matter of time.

June also marked a tragic event when our local autism community mourned the death of a little boy, Paulie. My heart hurt so much for his family and really brought home losing your child could be. My mom’s move date was bumped to the end of August so that she will now get B from the bus.

July marked a well deserved break in Vegas for Husband and me. However, M also developed Hand Foot & Mouth right before we left (evidenced by the blisters that showed up when I called my mom when we got to the hotel). Poor mom dealt with B on break from school and M’s painful mouth sores.

We signed B up for developmental flag football. He’s had a couple of practices and it will be interesting to see what happens. M might end up in gymnastics, given how many times she gives me a heart attack climbing and swinging over things.

My older sister has now made it onto the kidney transplant list. I hate having the genetic markers for kidney disease.

Now we are at the beach “enjoying” vacation (as well as you can I suppose). We participated again in Surfers Healing a few days ago. As you know, this vacation isn’t for parents as we are playing referee, chauffeur, chef, housekeeper, etc. – albeit with a nicer view.

Copyright Thirty Three Photography - B with his surfer Kalani Brown (2014)

Copyright Thirty Three Photography – B with his surfer Kalani Brown (2014)

After we get back that’s when the big rush before school starts. B will be a first grader – full day school for him now. B now seems to struggle with anxiety on top of everything else going on. Sadly that is something I am expert on but adds a challenge when two anxious people have to work through it.

I hope to get back on a routine. However, judging by the fact that it took me almost a week to write this (between wrangling kids and driving) who knows?

 

 

Posted in Family, Fun in the Sun, Life, Love, Magic Moments, Mayita, Mayor Bee, Ramblings, Siblings, Special Needs | Tagged , , | 1 Comment

Throwback Thursday: Welcome Summer!

Always was a big fan of the beach. B in South Carolina, 2009.

Always was a big fan of the beach. B in South Carolina, 2009.

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Wordfull Wednesday – Kiai!

For those asking about B’s adaptive karate class – here is the video of the demonstration from a couple of weeks ago. Enjoy!

Posted in Autism, Autism Awareness, Life, Loudoun Local, Mayor Bee, Special Needs | Tagged , , , , | Leave a comment

RIP Paulie.

I’ve written last year about the wandering epidemic and the risk of drowning by those on the spectrum.

And now it has hit too close to home for me.

http://www.washingtonpost.com/local/loudoun-boy-6-is-one-of-3-children-in-region-dead-in-apparent-drownings-over-the-weekend/2014/06/16/efe7b3d2-f580-11e3-a606-946fd632f9f1_story.html

On Friday, the last day of school, B’s former after-school program held a party. It was supposed to be a pool party to celebrate the end of the school year.

One little boy wandered off while they were getting ready. The adults realized he was gone – by the time they found him he was in the pool. First responders were called but it was too late. The little boy was pronounced dead at the hospital.

Another angelic life lost through a senseless and tragic accident.

Though B didn’t go to this program this year, I’m still part of the community. I found out on Saturday night through a fellow mom. The boys that were at that party had to witness the paramedics, the ambulance, the panicked looks. I know that they are traumatized.

Today, media reports have started to come out. Besides the local media, it did make the Washington Post – along with two other drownings in the area.

I know that little boy and his mother and I’m heartbroken. We always try our best to keep close watch on our children – but no one expected this. What a tragedy – and something we as a community have to work to prevent in the future.

I’m still in shock. I keep looking at the pictures on a FB page and I’m distraught by even imagining losing my B. I cannot fathom what the little boy’s parents are going through.

In just a blink of an eye – your life can change forever.

Posted in Autism, Autism Awareness, Life, Special Needs, The Lows | Tagged , | Leave a comment