The Generation Gap.

Being welcomed home, February 1975.

Being welcomed home, February 1975.

(Picture posted above is my mother holding me when I was a few days old. It was late February 1975 so that should give you an idea how old I am.)

 

Welcoming a new member to your home can cause a lot of change.

In June my mom made the decision to live with us. I know it was a hard decision for her – but she knew she didn’t want to stay by herself, especially this winter. Her dog recently passed away as well so with exception of a few friends and family, she was alone. Alone in a big house in the country with little to do. I would be a little freaked out being alone too.

She drove down from Pennsylvania Labor Day weekend. She didn’t have much – clothes, a few knick-knacks, and the strongboxes that were extremely heavy.

We had the most room and my mom offered to help us with, well, whatever. Mainly, she wanted to spend time with her grandkids.  B now comes home right after school. He seems to enjoy that – a bus ride home, then to relax in his room or whatever. It helps Husband and me because now we don’t have to constantly be tethered to the phone, worried about a phone call to pick him up.

So Husband gave her some paint samples and she picked the color for her room. He put up crown moulding and painted the bedroom. I managed to get about 95% of the junk that piled up in the room (mainly from consignment sales). We even bought her her own TV so she wouldn’t have to be constantly subjected to Nick Jr. and Mickey Mouse. Continue reading

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One Week Down…Gazillion More To Go.

School

(Picture posted above is B in front of our house. He’s holding a sign that says, “First Day of School September 2, 2014″. He is wearing a bright red Rabbids Invasion shirt that his grandma got him)

The mantra is, “So far, so good” for the past week of school. Continue reading

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#OnePerfectDay…again.

Izzy and B, Surfers Healing Virginia Beach 2014

Izzy and B, Surfers Healing Virginia Beach 2014

Two weeks ago, B got to surf again.

I speak to the high heavens about Surfers Healing but I can’t help it. It’s an amazing organization that does fabulous camps for children with special needs. Professional surfers take time out of competitions and travel around the country working with kids of all kinds of challenges and struggles.

You have the local organizations that pair up with Surfers Healing to handle the logistics, food, marketing. All volunteers that put their heart and soul into making kids that wouldn’t otherwise have the chance to experience catching a wave.

And yet, they all do it willingly and with a smile.

Oh wait, you DON’T know about Surfers Healing?

Continue reading

Posted in Autism, Autism Awareness, Fun in the Sun, Life, Love, Magic Moments, Mayor Bee, Ramblings, Special Needs | Tagged , , , , | 2 Comments

Never Will Forget You – Tribute to Avonte Oquendo

Originally posted on Taking it a Step at a Time - Autism:

Avonte Never Forget

RecentlyI had theimmense privilegeand honortolisten tothe beautiful and heartbreaking song written in memory of Avonte Oquendo, by his uncle, Rocopera. Even over the telephone,it was apparentthat thelove he has for this child is immeasurable. The pain of this loss will never be healed.

“This song comes from a broken heart”

His heart IS broken – all of our hearts are broken. What happened to this beautiful child should never have happened.What happenedis every parents’ nightmare. Those of usthat havechildren with special needs know this fear all too well. We know that simple things like just puttingyour childon a school bus and sendinghim offto school can be terrifying. They are not with us, we are not in control, we are not there toprotect and take care of them. As the mother of an adult child with autism, I know this fear. I live this fear. – We all live this fear.

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